• Hadriscus@lemm.ee
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    9 months ago

    what the actual fuck… thanks for sharing your story and I wish you courage. Have you considered moving ? given the severity of your condition ?

    • A Phlaming Phoenix@lemm.ee
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      9 months ago

      It’s always a consideration, but the question is where would we move to (and how much am I willing to uproot my family)? Canada is a nice place with a better healthcare system, so maybe there? But that’s expensive all on its own, and I have to consider that I have two autistic kiddos who are currently receiving their education at the best school in the state for special ed kiddos. Is it worth it? Maybe not. For now, I think we should stay where we are. I love it here, except for the high cost of my own care. Think I’d rather stick it out and fight for a better system here. Maybe we can improve things for everyone instead of jumping ship.